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xxxx://xxx.xxxxxxx.xxx.xx
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xx.x.xx.xx
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2
http://inews.co.uk
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http://inews.co.uk/news/great-ormond-street-hospital-sisters-batten-disease-special-treatment-223942
80.239.254.28
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3
xxxx://xxx.xxxx.xxx.xx
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http://www.countryliving.com
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http://www.countryliving.com/uk/news/a34891519/used-stamps-donate-charity/
151.101.244.155
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xxxx://xxx.xxxx.xxxxxxxxx.xxx
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6
http://www.open.edu
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http://www.open.edu/openlearn/science-maths-technology/biology/rare-diseases-low-numbers-high-impact
54.192.99.10
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xxxx://xxx.xxxxx.xx.xx
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8
http://www.stir.ac.uk
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http://www.stir.ac.uk/research/hub/publication/706899
139.153.12.174
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9
xxxx://xxx.xxxxxxxxxxxx.xx.xx
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http://gtr.ukri.org
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http://gtr.ukri.org/projects?ref=BBS%2FE%2FD%2F10002071
35.71.141.34
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11
xxxx://xxx.xxx.xx.xx
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12
http://search3.openobjects.com
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http://search3.openobjects.com/kb5/durham/fsd/results.action?localofferchannel=3&sr=50&nh=10
193.34.187.148
11
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xxxx://xxx.xxxxxxxxx.xxx.xx
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14
http://www.evelinalondon.nhs.uk
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http://www.evelinalondon.nhs.uk/our-services/hospital/batten-clinic/patients.aspx
185.18.139.153
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15
xxxx://xxxxxxxxx.xxxxxxxxx.xxxx
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16
http://www.scottishmedicines.org.uk
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http://www.scottishmedicines.org.uk/about-us/public-involvement/patient-group-partners/
84.22.188.239
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17
xxxx://xxxx.xxx
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18
http://www.seeability.org
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http://www.seeability.org/find-homes-support/heather-house
185.134.197.195
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19
xxxx://xxxx.xxxxxxxxxxxxx.xxx
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20
http://directory.kentlive.news
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http://directory.kentlive.news/search/yateley/charities-and-trusts/5
145.239.170.100
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21
xxxx://xxxxxxxxx.xxxxxxxxx-xxxx.xx.xx
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22
http://directory.hertfordshiremercury.co.uk
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http://directory.hertfordshiremercury.co.uk/search/reading/charities-and-trusts/4
145.239.170.100
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23
xxxx://xxx.xxxxxxxxxxxxxxxxxxxx.xxxx
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111
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24
http://www.progress.org.uk
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http://www.progress.org.uk/about-us/people/rachel-montgomery/
192.124.249.130
5
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25
xxxx://xxx.xxxxxxxx.xx
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2
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26
http://lshubwales.com
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http://lshubwales.com/cy/news/beth-wnaethon-ni-ddysgu-yn-y-symposiwm-cynhyrchion-meddyginiaethol-therapiau-uwch
51.141.97.243
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27
xxxx://xxx.xxxxxxxx.xxx.xx
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28
http://bwc.nhs.uk
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http://bwc.nhs.uk/useful-metabolic-websites
51.11.17.97
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29
xxxx://xxx.xxx-xxxxxxxxxxx.xx
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30
http://chect.org.uk
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http://chect.org.uk/a-guide-to-holidays/
66.42.81.119
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31
xxxx://xxx.xxxxxxxxxxxxxxxxxx.xxx
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32
http://www.stocktoninformationdirectory.org
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http://www.stocktoninformationdirectory.org/kb5/stockton/directory/localoffer.action?localofferchannel=2-1&sortorder=1&sorttype=field&sortfield=__created
193.34.187.147
527
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xxxx://xxxxxxxxxxxx.xxx.xxx.xx
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504
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http://familyinformationdirectory.surreycc.gov.uk
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http://familyinformationdirectory.surreycc.gov.uk/kb5/surrey/fsd/results.action?familychannel=1&slaction=ADD&itemid=0XjM0DTKPWHcvPgKszkSwmnIBe6v&sr=100&nh=10
45.60.34.90
234
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xxxx://xxx.xxxxxxxxxxxxxxx.xxx
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6
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36
http://projects.leitat.org
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http://projects.leitat.org/batten-disease-awareness-day-8th-june-2018/
92.222.177.246
4
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37
xxxx://xxxxx.xx
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2
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38
http://www.desertspringsresort.es
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http://www.desertspringsresort.es/home/desert-springs-resort/testimonials/page/17/
13.37.5.106
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39
xxxx://xxxxxxxxxxxx.xxx
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2
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40
http://frambu.no
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http://frambu.no/diagnose/nevronal-ceroid-lipfuscinose/
51.13.108.57
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41
xxxx://xxx.xxxx.xxx
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42
http://gesellschaft-fuer-neuropaediatrie.org
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http://gesellschaft-fuer-neuropaediatrie.org/info-fuer-eltern/
213.182.16.100
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xxxx://xxx.xxxxxxxxxxxx.xxx
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1
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44
http://www.brains4brain.eu
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http://www.brains4brain.eu/patients-and-families-support/
167.86.122.13
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45
xxxx://xxx.xxxx.xxx.xx
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46
http://www.basingstokepages.co.uk
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http://www.basingstokepages.co.uk/company/438265229447168
145.239.170.100
4
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47
xxxx://xxx.xxxxxxxxxxxx.xx.xx
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4
48
http://www.claradyck.de
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http://www.claradyck.de/battens-de.htm
89.31.143.100
2
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49
xxxx://xxx.xxx-xxxx.xx
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50
http://www.williamscrawford.co.uk
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http://www.williamscrawford.co.uk/katies-story-bdfa/
151.139.128.11
2
4
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