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xxxx://xxx.xxxxxxxxxxxxxxx-xxxxxxxxx.xxxx.xx
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2
http://www.aphp.fr
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http://www.aphp.fr/maladies-rares
66.22.32.117
9
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3
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http://www.chu-lyon.fr
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http://www.chu-lyon.fr/centre-de-reference-des-deficiences-intellectuelles-de-causes-rares-crdi
195.254.160.34
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http://www.irdes.fr
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http://www.irdes.fr/documentation/2022/1803-actualites-sante-et-protection-sociale.html
194.177.39.148
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7
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http://ojrd.biomedcentral.com
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http://ojrd.biomedcentral.com/articles/10.1186/s13023-020-1308-x/tables/2
151.101.244.95
3
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9
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http://www.mypharma-editions.com
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http://www.mypharma-editions.com/maladies-rares-un-nouveau-recueil-de-donnees-dans-le-cadre-des-acces-precoces
213.186.33.18
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11
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5
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12
http://www.filnemus.fr
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http://www.filnemus.fr/
149.202.181.38
604
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13
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133
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http://www.filiereorkid.com
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http://www.filiereorkid.com/bndmr-base-de-donnees-nationale/
5.135.105.44
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5.135.105.44
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18
http://www.filiere-cardiogen.fr
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http://www.filiere-cardiogen.fr/evenement/seminaire-annuel-bndmr/
213.186.33.40
3
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19
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20
http://pharmaceutiques.com
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http://pharmaceutiques.com/actualites/nos-evenements/les-donnees-de-vie-reelle-carburant-de-linnovation-dans-les-maladies-rares/
178.32.121.7
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http://muco-cftr.fr
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http://muco-cftr.fr/index.php/en/19-english/the-cystic-fibrosis-network
155.133.142.11
9
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4
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24
http://filiere-oscar.fr
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http://filiere-oscar.fr/index.php?id=41
149.202.181.38
669
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2
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26
http://www.developpement-genital.org
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http://www.developpement-genital.org/presentation-globale-du-centre/
192.99.13.111
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27
xxxx://xxxxxx.xx
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4
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28
http://www.filieresmaladiesrares.fr
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http://www.filieresmaladiesrares.fr/acteurs-des-maladies-rares-en-france-et-en-europe/
5.135.105.44
4
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29
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2
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30
http://asbbf.be
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http://asbbf.be/France-Centre-de-Reference-Maladies-Rares-Filiere-NeuroSphinx
141.94.78.188
2
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31
xxxx://xxx.xxxxxxxxxx.xx
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32
http://www.maladie-genetique-rare.fr
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http://www.maladie-genetique-rare.fr/index.php?id=56
163.172.221.217
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33
xxxx://xxxxx.xx
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34
http://static2.lequotidiendumedecin.fr
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http://static2.lequotidiendumedecin.fr/actus-medicales/recherche-science/les-acteurs-des-maladies-rares-inquiets-pour-lavenir
65.9.44.93
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1
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36
http://prior-maladiesrares.fr
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http://prior-maladiesrares.fr/presentation-priorerhr/
146.88.234.127
1
1
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